Our Survivorship Research Helps Cancer Survivors Today
Recognizing the growing number of cancer survivors in the United States, LIVESTRONG Foundation launched the LIVESTRONG Survey for Post-Treatment Cancer Survivors in 2006 and 2010. Cancer survivor respondents in those surveys experienced significant concerns after their treatment was complete. Unfortunately for many, their concerns were not addressed.
In 2012, we decided to focus the LIVESTRONG Survey on the practical concerns that cancer survivors face and developed the survey in coordination with the National Cancer Institute, the Office of Behavioral and Social Sciences Research, the Centers for Disease Control and Prevention, American Cancer Society and the Agency for Healthcare Research and Quality. Our goal was to include elements of the Experiences with Cancer Survivorship supplement of the Medical Expenditures Panel Survey (MEPS).
In total, 6,383 survivors completed the survey and provided information about their practical concerns related to work, school, debt, insurance and fertility preservation.
Throughout 2013, the Foundation will release a series of briefs on the results of the 2012 survey.
- The first analysis conducted on the 2012 LIVESTRONG Survey results focuses on the questions about treatment summaries and survivorship care plans.
- Overall, the Foundation found that:
- Of the 5,315 survivors who had completed treatment, only 17% indicated that they had received a care plan
- The more recently survivors had completed treatment, the more likely they were to have received a care plan
- Care plans helped to strengthen patient-provider communications
Read the Survivors’ Experience with Survivorship Care Plans brief.