General Questions About Survivorship Resources

Who is a Survivor?
Survivor - Anyone battling cancer. A survivor might be the person diagnosed, a spouse, a child, a parent, a friend or any caregiver.

What is Survivorship?
Survivorship begins at diagnosis, the moment your battle with cancer begins. A survivorship experience includes physical, emotional, and practical aspects. Cancer survivorship describes the many experiences and emotions that are part of living life as a cancer survivor.

How can I use the survivorship resources?
The survivorship resources are intended to create awareness of survivorship topics; it is not intended to replace formal medical care. If you are concerned about any survivorship topics you read about on livestrong.org , please discuss these topics with your health care team.

How do I use the survivorship resources if I am caring for someone with a history of cancer?
If you are caring for someone with a history of cancer, you can use the resources as if you were that person. You can look for information that matches the survivor's profile.

What if there are medical terms that I don't understand?
We have tried to simplify the information presented, however occasionally medical terms will be used. If you do not understand a term used, please visit the Glossary for a complete definition of medical terms. You can also talk to your health care team about unfamiliar terms.

Where does the survivorship information come from?
Experts in the cancer community have worked together to create the survivorship information. Each topic is covered by an expert in that field. Please refer to individual documents for accreditation information.

What if I do not see a topic I am looking for in the survivorship resources?
The survivorship resources do not cover every topic related to cancer survivorship; new topics are being added regularly. Check back to see if the survivorship topic you are looking for has been added.

How can I watch Survivorship Stories?
You are able to read survivorship stories as well as watch the videos. Videos play in either QuickTime or Windows Media Player format. If you do not have QuickTime, you can download a free version here.
>> Download QuickTime 
If you do not have Windows Media Player, you can download a free version here.
>> Download Windows Media Player

How do I submit my Survivorship Story?
Select the Share Your Story icon on any page of the Web site to share your story of cancer survivorship with the Lance Armstrong Foundation. 

How do I print survivorship resources?
When you are looking at a Survivorship Story or a Survivorship Topic, you can print the information by selecting the print icon on left side of the page.

How can I email survivorship resources?
When you are looking at a Survivorship Story or a Survivorship Topic, you can email the information to anyone with a valid email address by selecting the email icon on the left side of the page.

How can I get my organization included in the additional resources?
All references to third-party organizations or resources are included in relation to survivorship topics. If you feel your organization or service may be a good resource for cancer survivors or their families to get more information on a specific survivorship topic, please send an email to livestrong@laf.org. This email should include your organization's name, a contact name and what topic(s) most closely reflect the services offered by your organization.  We will review your request as part of our standard evaluation process. We will respond to your request via email.

My organization is listed as an additional resource, how do I update the description?
If your organization or service is included as an additional resource, and you feel that the description is not accurate of the services you provide related to a particular survivorship topic, you can send an email to livestrong@laf.org. This email should include your organization's name, a contact name, where your organization is misrepresented, and your suggested updates or edits. If the editorial team does not feel your requests fits with the LAF editorial style, we will remove the reference to your organization. We will respond to your request via email.

Can I reference the survivorship information as a resource in my publication?
We are pleased to allow organizations that provide high-quality information on cancer survivorship topics to reference the Lance Armstrong Foundation's information as a resource for cancer survivors. If you are interested providing a reference to livestrong.org in your publication, we ask that you send an email to livestrong@laf.org requesting permission. This email should include your organization's name, a contact name and a description of the context in which you will be referencing the information. We will respond to your request via email.

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Questions About Survivorship Worksheets

I do not have Adobe Acrobat, how can I view the Medical and Practical Summaries?
You can download a free version of Adobe Acrobat Reader.
>> Download Adobe Acrobat Reader

How can I update my Medical and Practical Summaries?
You can type information directly in the Medical and Practical Summaries.  You may want to save the medical and practical summaries to your computer so that you may print them out and add new information.  The Lance Armstrong Foundation does not keep a record of the summaries; they are for your personal use only.

How do I use the Health Journal?
The Health Journal offers you ideas on how to keep track of the following information: Health Diary (use to write down physical and emotional changes); Health Care Team Appointment (use to write down your questions and concerns for the health care team and to take notes during the appointment); and List of Medications (use to keep a list of all medications in one place). The Health Journal is a good tool to use for communicating with your health care team.

How do I use the Medical Treatment Summary?
The Medical Treatment Summary provides charts to help you keep records of your cancer treatments, phone numbers for your health care team, and follow-up visits with your health care team. The Guide provides tips on how to get copies of important medical records. The Medical Treatment Summary is a good tool to use for keeping all of your cancer treatment information in one place.

How do I use the Practical Information Summary?
The Practical Information Summary provides worksheets to help you organize information on your family, medical wishes, finances and estate planning. The worksheets can help you understand your current needs in these areas and plan for the future.