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Home > Cancer Support > Learn About Cancer > Read About Cancer Concerns > Physical Effects > Physical Effects Aftereffects of Cancer Treatment
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Aftereffects of Cancer Treatment

Aftereffects are physical, emotional and practical changes that happen after cancer treatment has been completed. Knowing what some of the common aftereffects are and why they happen can help you prepare for life after treatment.

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Aftereffects of Cancer Treatment: Detailed Information

This information is meant to be a general introduction to this topic. The purpose is to provide a starting point for you to become more informed about important matters that may be affecting your life as a survivor and to provide ideas about steps you can take to learn more. This information is not intended nor should it be interpreted as providing professional medical, legal and financial advice. You should consult a trained professional for more information. Please read the Suggestions and Additional Resources documents for questions to ask and for more resources
 
The day that treatment ends, a new chapter in life begins. You may have left cancer behind and are continuing your life with few or no lingering problems. Or you may have entered an unexpected and confusing new phase of the cancer experience. This phase does not focus on battling cancer itself. Instead, the new challenge is about identifying, understanding and living with the unexpected or unwelcome aftereffects of cancer or cancer treatment on your body, emotions and life.

What will survivors learn in this document?

This document provides an introduction to understanding aftereffects of cancer and cancer treatment and how they may affect your life.

Because the aftereffects of different kinds of treatment are difficult to describe in one document, we do not provide extensive details on the specific physical, emotional and practical problems. However, the information in this document will help you be aware of the possibility of aftereffects so you can keep track of your symptoms and talk about them with your family and your health care team.

All survivors can benefit from this information. However, it is written for adult survivors who have completed treatment either recently or in the last several years. Ideas on how survivors currently in treatment can use this information are given later in this document.

What are aftereffects?

Aftereffects can be described as long-term or late effects of cancer treatment.

Long-term effects develop during treatment, are lingering or chronic (do not go away) and continue after treatments are over. Many long-term effects improve or resolve with time, such as anemia, fatigue and anxiety (feeling worried). Some long-term effects are permanent, such as limb loss, some types of limb weakness or nerve damage.

Late effects are delayed and can surface months to years after treatment ends. Usually, the earlier these problems are identified, the easier they are to treat. Some late effects are long-lasting or permanent, such as certain types of heart disease or lung disease, lymphedema (swelling in a limb due to blockage of the lymph system), osteoporosis, depression and second cancers.

There are three different categories of aftereffects:

  • Physical (such as scars from multiple surgeries, loss of limbs or fatigue)
  • Emotional (such as anxiety or depression)
  • Practical (such as problems with employment or health insurance)

Aftereffects can range from very mild to very serious and will vary from one survivor to the next. Doctors cannot always predict which aftereffects, if any, will occur, or how serious or long-lasting they will be. You may not suffer any significant aftereffects at all.

Aftereffects are sometimes an unavoidable and difficult part of being a cancer survivor. Your health care provider can not always predict what will happen.

However, experiencing aftereffects does not mean that there is no hope in maintaining a high quality of life. Treatment can help you manage aftereffect symptoms and continue to live a full and happy life.

Why have some survivors never heard of aftereffects of cancer treatment?

The idea of aftereffects may be new to you. Much less is known about aftereffects than about side effects during treatment; however, ongoing research is actively exploring this area. Not all health care professionals talk to newly diagnosed survivors or those undergoing treatment about what to expect after treatment ends. When you don’t know what to look for, new symptoms can be very confusing and even frightening.

Some survivors may think they are “going crazy” because they didn’t expect or don’t understand their physical or emotional symptoms. If you feel this way, you are not alone. The truth is that something is causing these symptoms, and the cause may or may not be related to your cancer history. You need to report your symptoms to your health care team and undergo proper evaluation. Your symptoms may be easily treatable, even if they are related to aftereffects of cancer treatment. Aftereffects of cancer are real, and if you are experiencing symptoms, you deserve help in learning how to understand and manage them.

Cancer treatments and aftereffects

The most common treatments today for treating cancer are surgery, radiation and chemotherapy. These treatments may be given as stand-alone treatments or, more commonly, in some combination with one another. These anticancer therapies may result in a cure, remission, disease control without remission or symptom management (palliation), depending on the particular type of cancer and the stage of disease.

The purpose of the following short descriptions of cancer treatment is to explain in a very simple way why aftereffects can occur. Not all cancer survivors will experience these aftereffects. Learning about them may be scary. However, when you learn what the possible effects are, you can know what to expect and feel more confident in reporting any symptoms to your health care team right away. Medical attention can minimize problems associated with these aftereffects.

Why does surgery cause aftereffects?

Surgery as a cancer treatment means having cancerous tissue removed from the body. The goals of surgery are to confirm the presence of cancer cells by taking a sample of tissue (biopsy) and then to help eliminate the cancer by removing as much of the tumor as possible. Sometimes surgery is used to reduce the size of a tumor (to “debulk” the tumor) before using other therapies to eliminate the cancer, or to implant a device for administering treatment.

Damage to healthy tissue can result from the growth of a tumor, which damages or kills normal cells as it grows. Damage may also occur when healthy tissue surrounding the tumor is removed during surgery to make sure that all of the cancer cells are removed. Surgery can damage muscles, bones, nerves and organ systems, depending on what part of the body is operated on.

A few examples of possible aftereffects of surgery:

  • Scarring at the incision site
  • Lymphedema (swelling of upper or lower limbs)
  • Problems with movement or activity
  • Nutritional problems (for example, if part of the bowel is removed)
  • Cognitive problems such as memory loss, learning in children, concentration and processing 
  • Changes in sexual function and fertility
  • Pain that may be long-term, chronic or acutely related to surgery
  • Psychological effects of physical changes, even if the physical changes are not visible to others (for example, feeling self-conscious about a scar from surgery, even if that scar is usually hidden by clothing)

Although aftereffects can still occur, the risks of aftereffects of surgery have been reduced over the years. For many types of cancer, less invasive surgery is now used, which results in less scarring than years ago. Newer methods limit the damage to normal tissues, and reconstructive surgery now helps reduce noticeable physical changes from surgery. Even when a radical approach is needed, advances in surgical technique and technology have dramatically reduced the damage and resulting long-term effects associated with these procedures.

Why does chemotherapy cause aftereffects?

Chemotherapy medicines can kill or stop cell growth and cell reproduction. Chemotherapy medicines can be given as an oral tablet, by injection or through the vein (an IV).

These medicines circulate throughout the entire body through the bloodstream. Because most of these medicines do not make a distinction between cancerous cells and non-cancerous cells, they can damage healthy cells that normally divide quickly. This can cause systemic effects (effects that happen throughout the body). This damage to healthy cells is the reason for side effects.

Many of these medicines interfere with rapidly growing cells of the body like the gastrointestinal lining, hair, skin and nails. This is why survivors receiving these medicines experience temporary side effects such as mouth sores, upset stomach (sometimes with vomiting), hair loss and skin rashes. As the non-cancer tissues repair themselves, the side effects improve or resolve.

Aftereffects happen when organs are damaged by high doses of or repeated exposure to chemotherapy. How long the aftereffects last depends on many factors, including if and when the damaged organs can repair themselves. Not all chemotherapy medicines cause the same aftereffects. Some aftereffects are related to specific medicines, and some happen as a result of the combination of chemotherapy with other treatments, such as radiation.

Some examples of possible aftereffects of chemotherapy

  • Fatigue
  • Early or premature menopause
  • Infertility
  • Changes to the heart
  • Reduced lung capacity with difficulty breathing
  • Kidney and urinary problems
  • Neuropathy (numbness, tingling and other sensations in certain areas of the body, especially the hands and feet)
  • Muscle weakness
  • Cognitive problems such as memory loss or inability to focus
  • Osteoporosis
  • Changes in texture and appearance of hair and nails
  • Secondary cancers

Why does radiation therapy cause aftereffects?

Radiation therapy is the use of x-rays in a series of planned treatments. The x-rays are directed at a tumor located in a specific area of the body using a variety of techniques. Radiation can be administered either externally (on the surface of the skin) or internally (inside the body), and in high or low doses. The total dose of radiation that can be safely administered is well known, and the types of aftereffects that occur with certain radiation dose levels are also fairly well known. Aftereffects occur because of permanent damage to normal cells or structures of the body that are either right in or close to the area being exposed to radiation (the “field” or “radiation port”).

When external radiation is given, the area where the tumor is located must be clearly marked so that radiation is delivered directly to the tumor. Sometimes tiny dots are tattooed on the skin around the tumor to clearly mark its location. If there are vital organs, such as the heart, lungs or liver, in the radiation field, lead blocks are used to shield these organs from radiation. These shields help minimize radiation damage to normal tissues surrounding the cancer, as well as ensure that treatment is directed to the same location each time.

Some rays in the intended field may scatter and expose surrounding tissues and organs to small doses of radiation. Or, depending on the position of the tumor, it may be necessary to include some healthy tissue and organs in the field in order to ensure complete treatment of the cancer.

In contrast to chemotherapy, which is systemic, radiation is local and causes aftereffects only in the area of the body that was exposed to the radiation (known as local effects). Some radiation aftereffects are similar to those caused by chemotherapy. However, some examples of aftereffects that are specific to radiation include:

  • Cataracts (if radiated near eyes, cranial-spinal or Total Body Irradiation (TBI))
  • Permanent hair loss (if scalp is radiated over certain dose levels)
  • Dental decay, tooth loss, receding gums (if radiated near mouth)
  • Loss of tears and ability to produce saliva (if lacrimal or salivary glands in the face are radiated or TBI)
  • Problems with thyroid and adrenal glands (if neck radiated)
  • Slowed or halted bone growth in children (if bone radiated)
  • Affects on the pituitary glad and multiple hormonal effects related to hypothalamic-pituitary region being radiated
  • Decreased range of motion in the treated area
  • Skin sensitivity to sun exposure (in area of skin that was radiated)
  • Problems with the bowel system (if abdomen radiated)
  • Secondary cancers (in area radiated)
  • Infertility (if ovaries or testes, cranial-spinal were directly radiated or TBI)



What are some emotional aftereffects of treatment?

After treatment, you may continue to have strong feelings regarding your illness and treatment, or you may experience new emotions. Feelings about the cancer experience may even surface months or years later.

Some common emotions and concerns you may experience after treatment:

  • Anger
  • Fear
  • Sadness or depression
  • Anxiety
  • Uncertainty about the future
  • Concerns about pain or fatigue
  • Concerns about body image
  • Relationships with others
  • Lack of normalcy

Sometimes you may not know how to describe the feelings you are having. If you think that you are supposed to be grateful and happy, you may try to ignore unpleasant emotions. Even though you may be physically able to return to your normal daily activities or work, you may find that you aren’t very interested or that you have trouble concentrating. You may worry all the time or just have a general feeling of uneasiness or unhappiness. These emotions can affect how you communicate with your family and friends, and those relationships may suffer.

You may experience all, some or none of these emotional aftereffects. You may also have thoughts, feelings and reactions that are not mentioned. Asking for help from your family, health care team or mental health professionals can help you manage your emotions. Your concerns and feelings are important and deserve attention and appropriate treatment as soon as they are noticed.  Seeking psychological and counseling support is a part of many oncology programs and continues well into survivorship.  Your feelings are valid and to warrant proper evaluation and support.

What are some practical aftereffects of treatment?

You may have practical problems with every day life activities. Some problems may start during treatment and continue after treatment is finished. Other problems may surface months after treatment is completed, especially if physical and emotional aftereffects develop.

Some practical areas where problems may surface:

  • Difficulty working due to physical or emotional aftereffects
  • Changes in relationships with family, friends or co-workers
  • Difficulty getting health or life insurance
  • Difficulty communicating concerns with your health care team
  • Financial stress
  • Employment discrimination

These are just a few examples, but all areas of your life can be affected.

When do survivors need information on aftereffects?

  • Recently diagnosed survivors
    If you have recently been diagnosed, you can use this information to discuss your treatment options with your health care team. Once treatment is started, you can ask about what you can expect from different treatments and how your life may change during and after treatment.

    You may feel scared and even overwhelmed when learning about the possible aftereffects of treatment, but knowing what to prepare for can help you choose the treatment that is right for you. Talk about your concerns and fears with your health care team. Be honest and direct, and ask your health care team members to help you understand the possible changes to your life and what you can do to prepare for them.

  • Survivors who have recently completed treatment
    If you have recently completed treatment or are a few years out from treatment, you should talk to your health care team about a follow-up plan that identifies possible aftereffects and their symptoms. Knowing what to look for can help you get treatment early and possibly reduce the severity of some aftereffects. You can also reduce the stress of not knowing how to manage symptoms by talking to your health care team and using community resources.

  • Long-term survivors
    If you received treatment many years ago, you may be living with aftereffects that are much more difficult to manage. In the past, treatments for many types of cancer were more toxic or were given in much higher dosages, so greater damage to healthy tissue may have occurred. You may have longstanding symptoms that have not been evaluated or treated, either because the risk of aftereffects was not understood when you were treated or because effective treatments were not available. In addition to physical aftereffects, you may also be dealing with emotional and practical changes. You may be frustrated by the lack of information on the potential late effects of cancer treatment and where to find this information.

    Keeping a record of unexpected or unexplained emotions and practical problems can help you talk with your health care team and family about how past cancer treatments may be affecting your physical and emotional health. ACancer Survivor’s Health Journal can be found on www.livestrong.org/cancersupport in the Download Worksheets tab.

What information do childhood cancer survivors and older survivors need?

  • Childhood and adolescent cancer survivors
    There is a growing body of research on the aftereffects experienced by survivors who were diagnosed and treated as children or adolescents. In fact, there is more information available on children than on adult survivors. This document focuses on adults; however, resources are given in the Additional Resources document for further reading on aftereffects for survivors who received cancer treatment as children. The more complete information available on aftereffects of childhood cancer may be useful in understanding your own symptoms and for discussing these symptoms with your health care team. Keep in mind, though, that some of this information does not apply to adults, even adults who had the same type of cancer and the same type of treatment.

  • Older survivors
    Older survivors may have age-related changes in normal function and other illnesses (heart disease, for example) that affect their recovery from cancer treatment as well as their risk of certain aftereffects. Keeping a record of symptoms, known medical conditions and medications is very important when talking to your health care team members about physical changes. A Cancer Survivor’s Health Journal can be found on www.livestrong.org/cancersuport in the Download Worksheets tab.

Why do some survivors know so little about aftereffects?

  • During treatment survivors and their health care teams usually focus their attention on treating the cancer. Aftereffects are not the primary focus of discussions during the course of cancer treatment. Sometimes these discussions until symptoms show up after treatment.
  • Communication problems may prevent health care team members and survivors from easily understanding each other.
  • There is relatively little scientifically-proven information about aftereffects in adults.
  • There are only a few guidelines for physicians on providing follow-up care.
  • Primary care doctors who don’t specialize in oncology may not be aware of the aftereffects for certain treatments.
  • Doctors may not want to burden or frighten survivors with possible aftereffects that may or may not occur.
  • Cancer treatment is an emotional experience. Survivors may not be ready or willing to talk about possible aftereffects while going through treatment.
  • Survivors may not know how to record or report their symptoms.

How can survivors work with their health care teams to manage aftereffects?

Even though talking about aftereffects can be upsetting, you have a right to know what is happening or going to happen to your body. Knowing what to expect helps you to make decisions that are right for you, plan for the future and regain a sense of control over your life. Talking with health care team members is an important way for you to learn about possible aftereffects of specific treatments. This communication also helps to educate health care team members about important quality of life issues that can affect you. Much of what health care professionals know about survivorship topics comes directly from survivors themselves.

Health care team members should help you in the following ways:

  • Provide information and resources on your specific type of cancer
  • Describe risk factors and potential aftereffects
  • Help you understand and manage aftereffects
  • Help you understand which doctors you should see for routine follow-up visits or if certain symptoms or problems develop (oncologist, general practitioner, etc.)
  • Create a follow-up health plan when treatment ends. This plan will help you:
    • Know what symptoms to look for
    • Know how to reduce the risk of certain aftereffects
    • Understand your risk of secondary cancer
    • Know how often to see your health care team

You can work with your health care team in the following ways:

  • Keep a record of your symptoms and discuss them with your health care team
  • Ask questions when you don’t understand something
  • Follow any agreed-upon treatment plans for aftereffects
  • Read about aftereffects on your own and bring that information to your health care team visits

Remember that even if you are no longer seeing your cancer health care team, you can discuss these issues with any health care professional.

Will all doctors know how to diagnose and treat aftereffects?

After you finish treatments, you will probably see your oncologist for a while to watch your health. If you notice any new physical or emotional symptoms, talk to your oncologist. Decide with your oncologist if you need to make an immediate appointment or if you can discuss and evaluate your symptoms at the next scheduled visit.

If you are no longer seeing your oncologist, talk to your primary care provider (PCP) about symptoms that you notice. Not all doctors will know about aftereffects, so you may need to see an oncologist (preferably the one who treated you) or request a referral to a specialist who may have more knowledge about life after cancer treatment. This is especially important if you see a health care professional who you think does not take your concerns seriously or who does not think you need any special attention for your symptoms. You will also have to be your own best advocate for appropriate care after you finish your treatment. You may need to educate your family physician if consultation with an oncologist is necessary.

In most cases, even if you are being followed by a primary care provider for your non-cancer medical needs, it is helpful to have occasional follow-up visits with the oncologist who treated you. Your oncologist will usually know the most about your treatment and what aftereffects to look for. Some survivors have difficulty with health insurance companies when they want to see their original oncologists for aftereffects symptoms.

Talking with other long-term survivors who have similar challenges can also be helpful and reassuring. By sharing information, you can learn from their experiences and find ways to manage your own challenges.

The process of getting long-term follow-up care is not always easy. When your concerns are not acknowledged, you may be very frustrated. You will have to be active and determined in asking for the help you need.

Are there long-term follow-up clinics for survivors?

Many young survivors who were treated when they were children or adolescents continue to have access to pediatric long-term follow-up clinics. At this time, there are very few long-term follow-up clinics for adults. Several national cancer advocacy groups, including the Lance Armstrong Foundation, are working to bring more awareness to the aftereffects of treatment and the need for long-term follow-up care for adults.

Managing Aftereffects

Living with aftereffects of cancer treatment can be difficult. However, when you are aware that aftereffects can happen and seek help with symptoms early, you increase your chance for successful treatment and a better outcome.

Understanding that cancer aftereffects are possible can help motivate you to:

  • Change unhealthy behaviors (for example, stop smoking, improve diet)
  • Be aware of symptoms that may be signs of a problem
  • Seek a diagnosis when problems are noticed
  • Get treatment as soon as possible

This document was produced in collaboration with:
Constance Engelking R.N., MS, OCN®
Susan Leigh, R.N., Cancer Survivorship Consultant.

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Aftereffects of Cancer Treatment: Suggestions

The suggestions that follow are based on the information presented in the Detailed Information document. They are meant to help you take what you learn and apply the information to your own needs. This information is not intended nor should it be interpreted as providing professional medical, legal and financial advice. You should consult a trained professional for more information. Please read the Additional Resources document for links to more resources.

Keep a written record of all of your symptoms and concerns.

After treatment, be aware of the changes in your day-to-day physical and emotional health. Keep your health care team informed about changes that affect your overall well-being and ability to go about your daily routines.

Telling your health care team about all of the physical and emotional symptoms you are experiencing is very important to getting the right health care. However, describing your symptoms and concerns can be difficult. Writing this information down before your health care team visit can help you organize your thoughts and ensure that you report important information.

You can use the aLance Armstrong Foundation Health Journal to write down all of your physical and emotional symptoms and concerns. The Health Journal can be found at www.livestrong.org/cancersupport in the Download Worksheets tab.  The Health Journal includes:

  • Instructions on how to use the Journal to organize your questions and concerns and prepare for health care team visits
  • A Health Diary to record all of the physical and emotional symptoms you notice and when they happen
  • A Health Care Team Appointment document to write down your appointment dates and questions you want to ask your health care team
  • A List of Medications document to help you keep track of your medications

Questions you can ask your health care team about aftereffects.

Below are questions that can help you communicate with your health care team about aftereffects that you are already experiencing or that may happen in the future. Write these questions down in your Live Strong Health Journal or take this list with your to your appointments.

  • Can you tell me what, if any, aftereffects there will be on my day-to-day abilities as a result of treatment? Will I notice these effects right away? Months from now?
  • What early signs would tell me that something might not be right?
  • For what signs or symptoms would I need to see a doctor?
  • What doctor should I call for which signs and symptoms or problems?
  • What specific abilities or functions might I expect to lose? How much of that ability or function can I expect to regain? Over what time period? (Examples of abilities or functions might include driving a car, working or participating in sports activities.)
  • When can I resume sexual relations? When will it be possible for me to have a child? (These questions can be difficult to ask, but being honest and direct with your health care team will help you get information you need. They can help you recover and adjust in many areas of your life.)
  • What are my options for treating ongoing symptoms or problems?
  • Can you refer me to quality support services to help me with recovery? (Examples include physical therapy and rehabilitation services or psychological counseling services.)
  • Will I need personal assistance at home? What type? For how long?
  • Will I need special medical equipment and supplies? What type? For how long?
  • How often should I have follow-up visits with you? How often should I have follow-up visits with another type of doctor?
  • What kind of monitoring tests should I have and how often?

Use community resources to help you manage and understand aftereffects.

The aftereffects of cancer treatment can impact you and your family in many unexpected ways. When your life changes because of aftereffects, community resources can help you handle these changes.

The Additional Resources document provides a list of specific resources you can contact for services and more information on aftereffects.

These resources can help you

  • Learn more about cancer treatments and possible aftereffects
  • Find professional counseling resources to help you understand your symptoms and locate helpful community resources
  • Join a support group to help you understand your experiences by learning from others
  • Understand ways to handle employment, health insurance and life insurance problems that result from aftereffects of cancer treatment
  • Locate in home care services to help you with challenging physical aftereffects

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Aftereffects of Cancer Treatment: Additional Resources

The resources listed below provide more information and support services to help you with aftereffects.  Please read the Detailed Information and Suggestions document for more information and questions to ask.

Click a resource for more information:

  • LIVESTRONG SurvivorCare Program
  • National Cancer Institute (NCI)
  • Cancer Legal Resource Center (CLRC)
  • Job Accommodation Network
  • American Cancer Society
  • Life and Health Insurance Foundation for Education
  • Chemocare.com
  • American Society for Therapeutic Radiology and Oncology (ASTRO)
  • CureSearch
  • Eldercare Locator: Connecting You to Community Services
  • Visiting Nurse Associations of America (VNAA)

 

LIVESTRONG SurvivorCare Program
www.livestrong.org/survivorcare

 

Email:  Send email through the Web site. 
Phone:  1-866-235-7205 
  Case managers take calls Monday through Friday, 9:00 a.m. to 5:00 p.m. (EST). Voicemail is available after hours. 

LIVESTRONG SurvivorCare offers assistance to all cancer survivors, including the person diagnosed, caregivers, family and friends. The program provides education, information about treatment options and new treatments in development, counseling services and assistance with financial, employment or insurance issues. To provide these services, LIVESTRONG SurvivorCare has partnered with several organizations, including CancerCare, Patient Advocate Foundation and EmergingMed.

The LIVESTRONG Survivorship Notebook is a tool that can help you organize and guide your cancer experience. The portable, three-ring binder contains a variety of information covering a full range of physical, emotional and practical survivorship topics. You may order a free LIVESTRONG Survivorship Notebook at www.livestrong.org/notebook. Shipping and handling charges will apply.

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National Cancer Institute (NCI)
www.cancer.gov

 

Email:  Send an email through the "Need Help?" section of Cancer.gov. 
Phone:  1-800-4-CANCER (1-800-422-6237) 
  TTY for deaf and hard of hearing callers: 1-800-332-8615 
  English-speaking and Spanish-speaking information specialists answer calls Monday-Friday, 9:00 a.m. to 4:30 p.m. local time. 
Online:  Immediate online assistance is available (in English only) through LiveHelp, an instant messaging system for typing in questions and receiving responses from information specialists. You can access LiveHelp from the "Need Help?" section of the Cancer.gov homepage Monday-Friday, 9:00 a.m. to 11:00 p.m. (EST). 

Cancer.gov, the National Cancer Institute Web site, provides accurate, up-to-date information on many types of cancer and the challenges cancer can bring. You can also use the site to search for information by cancer type or topic, and you can access information about treatment-related issues. Information about financial and insurance matters is also included. You can learn how clinical trials work and search for a clinical trial in your area. This site has a detailed dictionary of cancer terms. Web site information and publications are available in Spanish.

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Cancer Legal Resource Center (CLRC)
www.disabilityrightslegalcenter.org

 

Email:  clrc@lls.edu 
Phone:  1-866-THE CLRC (1-866-843-2572) 
  TTY for deaf and hard of hearing callers: 213-736-8310 

The Cancer Legal Resource Center (CLRC) provides information and resources on cancer-related legal issues to survivors, their families, friends, employers, health care professionals, and others coping with cancer.  The CLRC offers information on a broad range of cancer-related legal issues, including health insurance, employment, government benefits, estate planning, advanced health care directives, family law and consumer assistance.  Through a national toll-free Telephone Assistance Line (866-THE-CLRC), callers can receive information about relevant laws and resources for their particular situation.  The CLRC volunteer panel of attorneys and other professionals provide more in-depth information and counsel to CLRC callers.  All CLRC services are free and confidential.  Services are available in both English and Spanish.

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Job Accommodation Network
www.jan.wvu.edu

 

Email:  jan@jan.wvu.edu 
Phone:  1-800-526-7234 
  This number is TTY equipped for deaf and hard of hearing callers. Calls are answered Monday-Friday, from 9:00 a.m. to 6:00 p.m. (EST). Voicemail is available after hours. 

The Job Accommodation Network Web site has tools to help you understand the types of workplace adjustments that may help you to continue working during and after cancer treatment. The American Disabilities Act (ADA) is described in detail. Examples of worksite modifications and self-employment information are also provided.

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American Cancer Society
www.cancer.org

 

Email:  Questions can be submitted in English or Spanish from the "Contact Us" page. 
Phone:  1-800-ACS-2345 (1-800-227-2345) 
  TTY for deaf or hard of hearing callers: 1-866-228-4327 
  English-speaking information specialists are available 24 hours a day. Spanish-speaking information specialists are available Monday-Friday, 6:30 a.m. to 7:00 p.m. (CST). You can leave a message in English or Spanish 24 hours a day.

The American Cancer Society Web site contains information about many of the challenges of cancer and survivorship. You can search for information by cancer type or by topic. ACS provides a list of support groups in your area, or you can join online groups and message boards. Some information on the Web site is available in Spanish, Chinese, Korean and Vietnamese. Information specialists can answer questions 24 hours a day by phone or email.

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Life and Health Insurance Foundation for Education
www.life-line.org

 

Email:  info@lifefdn.org 
Phone:  202-464-5000 

This Web site provides information about many different types of insurance, including life, disability, and long-term care insurance. Tools for calculating your insurance needs and tips on finding an agent are included. The site also has a glossary of insurance terms.

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Chemocare.com
www.chemocare.com

Chemocare.com provides many types of information on the aftereffects of specific chemotherapy drugs as well as how to manage these effects. This Web site allows you to search by the chemical name of the drug, brand name of the drug, or the acronym that is most commonly used for the drug. Information on long-term drug effects on the body, suggestions on when to contact your healthcare provider and self-care tips are also included.

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American Society for Therapeutic Radiology and Oncology (ASTRO)
www.rtanswers.org

 

Phone:  1-800-962-7876 

ASTRO's Web site has information for survivors who have had radiation treatment. There are several booklets on radiation therapy that discuss the different kinds of radiation and aftereffects of radiation therapy. These booklets can be viewed online, and free print versions can be ordered online.

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CureSearch
www.curesearch.org

 

Phone:  1-800-458-6223 
Email:  info@curesearch.org 

This Web site provides information on aftereffects of cancer treatment for survivors of childhood and adolescent cancers. Even though the site is written about children and adolescents, adults may find some of the information useful in understanding aftereffects. Information for caregivers is also included. The Web site provides guidelines for post-treatment screenings, explains possible aftereffects caused by cancer treatment and lists tips to manage aftereffect symptoms.

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Eldercare Locator: Connecting You to Community Services
www.eldercare.gov 

 

Email:  eldercarelocator@spherix.com 
Phone:  1-800-677-1116
  Calls are answered by Information Specialists from Monday-Friday, 9:00 a.m. to 8:00 p.m. EST. Voicemail is available after hours. Translators are available for 150 languages. 

The Eldercare Locator is a free national service of the U.S. Administration on Aging, U.S. Department of Health and Human Services.  It provides a connection to resources that enable older persons to live independently in their communities.  The Web site lists phone numbers for state and local Area Agencies on Aging that serve older adults and their caregivers. People of all ages can use this resource to find in-home care.

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Visiting Nurse Associations of America (VNAA)
www.vnaa.org

 

Phone:  617-737-3200
Email:  vnaa@vnaa.org 

VNAA is the national association of nonprofit, community-based visiting nurse agencies. Visiting nurses provide professional health care to individuals in their homes as they recover from illness or injury. This site provides fact sheets on choosing a home health care agency and types of home health care services. Also included is a search tool for finding a visiting nurse agency in your area.

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