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Aftereffects of Cancer Treatment: Additional Resources

The resources listed below provide more information and support services to help you with aftereffects.  Please read the Detailed Information and Suggestions document for more information and questions to ask.

Click a resource for more information:

 

LIVESTRONG SurvivorCare Program
www.livestrong.org/survivorcare

Email:  Send email through the Web site. 
Phone:  1-866-235-7205 
  Case managers take calls Monday through Friday, 9:00 a.m. to 5:00 p.m. (EST). Voicemail is available after hours. 

LIVESTRONG SurvivorCare offers assistance to all cancer survivors, including the person diagnosed, caregivers, family and friends. The program provides education, information about treatment options and new treatments in development, counseling services and assistance with financial, employment or insurance issues. To provide these services, LIVESTRONG SurvivorCare has partnered with several organizations, including CancerCare, Patient Advocate Foundation and EmergingMed.

The LIVESTRONG Survivorship Notebook is a tool that can help you organize and guide your cancer experience. The portable, three-ring binder contains a variety of information covering a full range of physical, emotional and practical survivorship topics. You may order a free LIVESTRONG Survivorship Notebook at www.livestrong.org/notebook. Shipping and handling charges will apply.

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National Cancer Institute (NCI)
www.cancer.gov

Email:  Send an email through the "Need Help?" section of Cancer.gov. 
Phone:  1-800-4-CANCER (1-800-422-6237) 
  TTY for deaf and hard of hearing callers: 1-800-332-8615 
  English-speaking and Spanish-speaking information specialists answer calls Monday-Friday, 9:00 a.m. to 4:30 p.m. local time. 
Online:  Immediate online assistance is available (in English only) through LiveHelp, an instant messaging system for typing in questions and receiving responses from information specialists. You can access LiveHelp from the "Need Help?" section of the Cancer.gov homepage Monday-Friday, 9:00 a.m. to 11:00 p.m. (EST). 

Cancer.gov, the National Cancer Institute Web site, provides accurate, up-to-date information on many types of cancer and the challenges cancer can bring. You can also use the site to search for information by cancer type or topic, and you can access information about treatment-related issues. Information about financial and insurance matters is also included. You can learn how clinical trials work and search for a clinical trial in your area. This site has a detailed dictionary of cancer terms. Web site information and publications are available in Spanish.

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Cancer Legal Resource Center (CLRC)
www.disabilityrightslegalcenter.org

Email:  clrc@lls.edu 
Phone:  1-866-THE CLRC (1-866-843-2572) 
  TTY for deaf and hard of hearing callers: 213-736-8310 

The Cancer Legal Resource Center (CLRC) provides information and resources on cancer-related legal issues to survivors, their families, friends, employers, health care professionals, and others coping with cancer.  The CLRC offers information on a broad range of cancer-related legal issues, including health insurance, employment, government benefits, estate planning, advanced health care directives, family law and consumer assistance.  Through a national toll-free Telephone Assistance Line (866-THE-CLRC), callers can receive information about relevant laws and resources for their particular situation.  The CLRC volunteer panel of attorneys and other professionals provide more in-depth information and counsel to CLRC callers.  All CLRC services are free and confidential.  Services are available in both English and Spanish.

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Job Accommodation Network
www.jan.wvu.edu

Email:  jan@jan.wvu.edu 
Phone:  1-800-526-7234 
  This number is TTY equipped for deaf and hard of hearing callers. Calls are answered Monday-Friday, from 9:00 a.m. to 6:00 p.m. (EST). Voicemail is available after hours. 

The Job Accommodation Network Web site has tools to help you understand the types of workplace adjustments that may help you to continue working during and after cancer treatment. The American Disabilities Act (ADA) is described in detail. Examples of worksite modifications and self-employment information are also provided.

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American Cancer Society
www.cancer.org

Email:  Questions can be submitted in English or Spanish from the "Contact Us" page. 
Phone:  1-800-ACS-2345 (1-800-227-2345) 
  TTY for deaf or hard of hearing callers: 1-866-228-4327 
  English-speaking information specialists are available 24 hours a day. Spanish-speaking information specialists are available Monday-Friday, 6:30 a.m. to 7:00 p.m. (CST). You can leave a message in English or Spanish 24 hours a day.

The American Cancer Society Web site contains information about many of the challenges of cancer and survivorship. You can search for information by cancer type or by topic. ACS provides a list of support groups in your area, or you can join online groups and message boards. Some information on the Web site is available in Spanish, Chinese, Korean and Vietnamese. Information specialists can answer questions 24 hours a day by phone or email.

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Life and Health Insurance Foundation for Education
www.life-line.org

Email:  info@lifefdn.org 
Phone:  202-464-5000 

This Web site provides information about many different types of insurance, including life, disability, and long-term care insurance. Tools for calculating your insurance needs and tips on finding an agent are included. The site also has a glossary of insurance terms.

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Chemocare.com
www.chemocare.com

Chemocare.com provides many types of information on the aftereffects of specific chemotherapy drugs as well as how to manage these effects. This Web site allows you to search by the chemical name of the drug, brand name of the drug, or the acronym that is most commonly used for the drug. Information on long-term drug effects on the body, suggestions on when to contact your healthcare provider and self-care tips are also included.

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American Society for Therapeutic Radiology and Oncology (ASTRO)
www.rtanswers.org

Phone:  1-800-962-7876 

ASTRO's Web site has information for survivors who have had radiation treatment. There are several booklets on radiation therapy that discuss the different kinds of radiation and aftereffects of radiation therapy. These booklets can be viewed online, and free print versions can be ordered online.

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CureSearch
www.curesearch.org

Phone:  1-800-458-6223 
Email:  info@curesearch.org 

This Web site provides information on aftereffects of cancer treatment for survivors of childhood and adolescent cancers. Even though the site is written about children and adolescents, adults may find some of the information useful in understanding aftereffects. Information for caregivers is also included. The Web site provides guidelines for post-treatment screenings, explains possible aftereffects caused by cancer treatment and lists tips to manage aftereffect symptoms.

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Eldercare Locator: Connecting You to Community Services
www.eldercare.gov 

Email:  eldercarelocator@spherix.com 
Phone:  1-800-677-1116
  Calls are answered by Information Specialists from Monday-Friday, 9:00 a.m. to 8:00 p.m. EST. Voicemail is available after hours. Translators are available for 150 languages. 

The Eldercare Locator is a free national service of the U.S. Administration on Aging, U.S. Department of Health and Human Services.  It provides a connection to resources that enable older persons to live independently in their communities.  The Web site lists phone numbers for state and local Area Agencies on Aging that serve older adults and their caregivers. People of all ages can use this resource to find in-home care.

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Visiting Nurse Associations of America (VNAA)
www.vnaa.org

Phone:  617-737-3200
Email:  vnaa@vnaa.org 

VNAA is the national association of nonprofit, community-based visiting nurse agencies. Visiting nurses provide professional health care to individuals in their homes as they recover from illness or injury. This site provides fact sheets on choosing a home health care agency and types of home health care services. Also included is a search tool for finding a visiting nurse agency in your area.

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