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Fatigue: Additional Resources

The resources listed below provide more detailed information and support services to help you with fatigue.  Please read the Detailed Information and Suggestions document for more information and questions to ask.

Click a resource for more information:

National Coalition for Cancer Survivorship (NCCS)
www.canceradvocacy.org

Email:  info@canceradvocacy.org 
Phone: 1-877-NCCS-YES (1-877-622-7937)
  An information specialist is available from 8:30 a.m. to 5:30 p.m. (EST).

The NCCS Web site provides comprehensive information on a wide range of cancer topics, including managing the side effects of cancer treatment, controlling pain, understanding clinical trials, maintaining good nutrition and exercise habits, getting the most out of your health insurance coverage and addressing employment issues. In addition, you can browse the Resource Guide for resources grouped by cancer type, by topic and by service.  NCCS also offers the Cancer Survival Toolbox®, a free audio program created to help people develop important skills to better meet and understand the challenges of their illness. The Toolbox offers information on communicating, decision making, problem solving, finding information, negotiating, and standing up for your rights for those living with, through, and beyond cancer. NCCS also offers a variety of publications that can be ordered free of charge. Information on the NCCS Web site is available in Spanish, and the Cancer Survival Toolbox is available in both Spanish and Chinese.

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Cancer Hope Network
www.cancerhopenetwork.org

Email:  info@cancerhopenetwork.org 
Phone:  1-877-HOPE NET (1-877-467-3638) 
  This number is answered Monday-Friday, from 8:00 a.m. to 5:30 p.m. (EST). Voicemail is available after hours. 

Cancer Hope Network provides free and confidential one-on-one support for adult survivors and their families. Survivors or family members are matched with a trained volunteer who has gone through and recovered from a similar cancer experience. Volunteers provide emotional support, and they give helpful information about their experiences with managing the physical, emotional and practical challenges of cancer. Whether you submit your request by phone or by email, a volunteer will try to contact you within 24 hours.

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American Institute for Cancer Research (AICR)
www.aicr.org

Email:  aicrweb@aicr.org 
Phone:  1-800-843-8114 
  TTY for deaf and hard of hearing callers: 202-855-1000 

AICR fosters research on diet, nutrition and cancer and educates the public about the results. Free educational materials, a Cancer Resource for newly diagnosed patients, and an online Cancer Survivor's Guide are provided. Call toll-free to request educational materials, information on specific cancers and personalized answers to your nutrition questions.  A registered dietitian will return your call within three business days.

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LIVESTRONG SurvivorCare Program
www.livestrong.org/survivorcare

Email:  Send email through the Web site. 
Phone:  1-866-235-7205 
  Case managers take calls Monday through Friday, 9:00 a.m. to 5:00 p.m. (EST). Voicemail is available after hours. 

LIVESTRONG SurvivorCare offers assistance to all cancer survivors, including the person diagnosed, caregivers, family and friends. The program provides education, information about treatment options and new treatments in development, counseling services and assistance with financial, employment or insurance issues. To provide these services, LIVESTRONG SurvivorCare has partnered with several organizations, including CancerCare, Patient Advocate Foundation and EmergingMed.

The LIVESTRONG Survivorship Notebook is a tool that can help you organize and guide your cancer experience. The portable, three-ring binder contains a variety of information covering a full range of physical, emotional and practical survivorship topics. You may order a free LIVESTRONG Survivorship Notebook at www.livestrong.org/notebook. Shipping and handling charges will apply.

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OncoLink
www.oncolink.org

Email:  Send email through the Web site. 

OncoLink is a multimedia cancer resource provided by the Abramson Cancer Center of the University of Pennsylvania.  Patients and physicians can get information about all types of cancer, news about research advances, and updates on cancer treatment. The Web site includes a clinical trial matching service, answers to frequently asked questions, or you can email experts with your own personal questions. OncoLink is also available in Spanish.

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After Cancer: A Guide to Your New Life
Author: Wendy S. Harpham, M.D.
Publication: Harper Perennial, 1995

Chapter 2 of this book has detailed information on the physical aftereffects of treatment. An entire 20-page section is devoted to fatigue: what it is and what causes it, how it may affect your life after cancer, how to talk with your healthcare team about your fatigue, and what steps you can take to improve your energy. At the end of the section, you will find information about "Post-cancer fatigue."

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