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Neuropathy: Additional Resources

The resources listed below provide more detailed information and support services to help you with neuropathy.  Please read the Detailed Information and Suggestions document for more information and questions to ask.

Click a resource for more information:

The Neuropathy Association
www.neuropathy.org

Email:  info@neuropathy.org 
Phone:  212-692-0662 

The Neuropathy Association Web site has information that describes peripheral neuropathy and provides treatment information. Support groups across the U.S. and several other countries are listed. The site also provides information about physicians and health care centers that focus on neuropathy. The Neuropathy Association services are available to all individuals after signing up for a free membership.

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National Institute of Neurological Disorders and Stroke
www.ninds.nih.gov

Email:  Send email through the Web site.
Phone:  1-800-352-9424 
  TTY for deaf and hard of hearing callers: 301-468-5981

The National Institute of Neurological Disorders and Stroke has general information on peripheral neuropathy. Information on clinical trials and research developments is also included.

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LIVESTRONG SurvivorCare Program
www.livestrong.org/survivorcare

Email:  Send email through the Web site. 
Phone:  1-866-235-7205 
  Case managers take calls Monday through Friday, 9:00 a.m. to 5:00 p.m. (EST). Voicemail is available after hours.

LIVESTRONG SurvivorCare offers assistance to all cancer survivors, including the person diagnosed, caregivers, family and friends. The program provides education, information about treatment options and new treatments in development, counseling services and assistance with financial, employment or insurance issues. To provide these services, LIVESTRONG SurvivorCare has partnered with several organizations, including CancerCare, Patient Advocate Foundation and EmergingMed.

The LIVESTRONG Survivorship Notebook is a tool that can help you organize and guide your cancer experience. The portable, three-ring binder contains a variety of information covering a full range of physical, emotional and practical survivorship topics. You may order a free LIVESTRONG Survivorship Notebook at www.livestrong.org/notebook. Shipping and handling charges will apply.

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Cancer Hope Network
www.cancerhopenetwork.org

Email:  info@cancerhopenetwork.org 
Phone:  1-877-HOPE NET (1-877-467-3638) 
  This number is answered Monday-Friday, from 8:00 a.m. to 5:30 p.m. (EST). Voicemail is available after hours. 

Cancer Hope Network provides free and confidential one-on-one support for adult survivors and their families. Survivors or family members are matched with a trained volunteer who has gone through and recovered from a similar cancer experience. Volunteers provide emotional support, and they give helpful information about their experiences with managing the physical, emotional and practical challenges of cancer. Whether you submit your request by phone or by email, a volunteer will try to contact you within 24 hours.

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American Cancer Society
www.cancer.org

Email:  Questions can be submitted in English or Spanish from the "Contact Us" page. 
Phone:  1-800-ACS-2345 (1-800-227-2345) 
  TTY for deaf or hard of hearing callers: 1-866-228-4327 
  English-speaking information specialists are available 24 hours a day. Spanish-speaking information specialists are available Monday-Friday, 6:30 a.m. to 7:00 p.m. (CST). You can leave a message in English or Spanish 24 hours a day. 

The American Cancer Society Web site contains information about many of the challenges of cancer and survivorship. You can search for information by cancer type or by topic. ACS provides a list of support groups in your area, or you can join online groups and message boards. Some information on the Web site is available in Spanish, Chinese, Korean and Vietnamese. Information specialists can answer questions 24 hours a day by phone or email.

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OncoLink
www.oncolink.org

Email:  Send email through the Web site. 

OncoLink is a multimedia cancer resource provided by the Abramson Cancer Center of the University of Pennsylvania.  Patients and physicians can get information about all types of cancer, news about research advances, and updates on cancer treatment. The Web site includes a clinical trial matching service, answers to frequently asked questions, or you can email experts with your own personal questions. OncoLink is also available in Spanish.

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