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Cognitive Changes: Additional ResourcesThe resources listed below provide more detailed information and support services to help you with cognitive changes. Please read the Detailed Information and Suggestions document for more information and questions to ask. Click a resource for more information:
CancerSymptoms.org
This Web site provides information on the causes and symptoms of cognitive changes and how to manage them. Other common aftereffects such as pain, fatigue and depression are also covered. You can ask a nurse about your symptoms by sending an email from the home page. Candlelighters Childhood Cancer Foundation
The Candlelighters Childhood Cancer Foundation offers information and publications on treatment and late effects for childhood cancer survivors. They describe the cognitive changes that children can experience and ways to manage them. Although this information is written about children, adults may find some of it useful in understanding cognitive changes and aftereffects. The Candlelighters Foundation also provides free books about cancer to children and their families who are affected by cancer. National Coalition for Cancer Survivorship (NCCS)
The NCCS Web site provides comprehensive information on a wide range of cancer topics, including managing the side effects of cancer treatment, controlling pain, understanding clinical trials, maintaining good nutrition and exercise habits, getting the most out of your health insurance coverage and addressing employment issues. In addition, you can browse the Resource Guide for resources grouped by cancer type, by topic and by service. NCCS also offers the Cancer Survival Toolbox®, a free audio program created to help people develop important skills to better meet and understand the challenges of their illness. The Toolbox offers information on communicating, decision making, problem solving, finding information, negotiating, and standing up for your rights for those living with, through, and beyond cancer. NCCS also offers a variety of publications that can be ordered free of charge. Information on the NCCS Web site is available in Spanish, and the Cancer Survival Toolbox is available in both Spanish and Chinese. LIVESTRONG SurvivorCare Program
LIVESTRONG SurvivorCare offers assistance to all cancer survivors, including the person diagnosed, caregivers, family and friends. The program provides education, information about treatment options and new treatments in development, counseling services and assistance with financial, employment or insurance issues. To provide these services, LIVESTRONG SurvivorCare has partnered with several organizations, including CancerCare, Patient Advocate Foundation and EmergingMed. The LIVESTRONG Survivorship Notebook is a tool that can help you organize and guide your cancer experience. The portable, three-ring binder contains a variety of information covering a full range of physical, emotional and practical survivorship topics. You may order a free LIVESTRONG Survivorship Notebook at www.livestrong.org/notebook. Shipping and handling charges will apply.
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