Practical Issues of Survivorship
> 2007 Participants
> 2006 Participants
> 2005 Participants
2007 Participants
Legal Clinic for the Disabled, Inc.
$49,860 for two years
“Law & Health Initiative for Cancer Survivors”
This project will address the economic and social well being of cancer survivors in the five-county Philadelphia region by helping them understand and overcome legal obstacles. LAF funding will provide legal outreach, education, advice and representation to this population. Staff will also provide outreach to health care professionals, social services providers and advocacy groups serving cancer survivors to educate them about legal issues facing cancer survivors, to inform them about the program and to build client referral networks.
Migrant Clinicians Network, Inc.
$150,000 for three years
“Can-track: Patient Navigation for Survivorship”
The Migrant Clinicians Network (MCN) provides critical patient navigation, bridge case management, medical records transfer, resource identification and evaluation, referral and education for migrant patients who have ongoing critical health issues including cancer diagnosis and treatment. LAF funding for this project will support the CAN-track system which is a mobile tracking system for migrant cancer survivors across the U.S. CAN-track offers clinicians a system which provides patients and their families personalized referral to care sources, information and the on-going support they need as they move from one location to another. With support from an Advisory Committee and previous patient and provider users, MCN will evaluate the constituent elements of the system, previous practices and protocols, and identify information technology innovations to improve the existing system critical to the survival of Hispanic migrants.
Gilda's Club North Texas
15,400 for one year
“Survivorship Series for Dallas ' GLBT Community”
Funding from LAF will provide the Gilda’s Club in the North Dallas area to expand their educational lecture series to include practical issues of survivorship that will specifically benefit the gay, lesbian, bisexual and transgender (GLBT) community. In addition to the emotional trauma experienced by anyone who receives a cancer diagnosis, gay men and women cancer survivors face a number of unique practical concerns caused by discrimination and resulting laws and policies. This grant will offer six free lectures or workshops to gay cancer survivors and evaluate the program effectiveness in meeting the needs of attendees, partners and Gilda’s Club members.
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2006 Participants
PA Breast Cancer Coalition
$25,000 for one year
Friends Like Me Survivor Care Packages
www.pabreastcancer.org
The LAF funding for this grant will provide Friends Like Me™ survivor care packages will be provided at no cost to the woman for breast cancer survivors in Pennsylvania who request them. The package will include important information about the special needs of breast cancer survivors and gift items purchased and/or donated. The survivor care packages will provide information about services addressing the needs of survivors and about their ongoing health concerns. This program will supplement the services of the multiple community organizations in Pennsylvania by gathering the information in one readily accessible place.
The Nebraska Indian Community College
$10,000 grant over one year
Spirit of Strength Cancer Survivorship Action Plan
Currently the Omaha and Santee Sioux Native American communities are not being served in the area of cancer survivorship. The Nebraska Indian Community College is using LAF funding to develop a strategic plan for cancer survivorship for the underserved Omaha and Santee tribes and to create collaborations between the tribal community and regional organizations. In addition, holding community dinners for tribal community members will be a culturally appropriate and effective way to increase awareness of cancer survivorship issues.
Cancer Legal Resource Center
$50,000 grant over two years
Cancer Legal Resource Center’s Legal Services Clinic
www.disabilityrightslegalcenter.org
The Cancer Legal Resource Center (CLRC) at the Disability Rights Legal Center will use the LAF grant to offer underserved communities personal answers to legal questions related to cancer diagnoses. The “Ask the CLRC” program will provide comprehensive on-site, cancer-related legal information at area hospitals, community-based organizations and community places of congregation in southern California. The CLRC is using creative outreach efforts such as a leave-behind manual for specific resources, telephone consultation for cancer patients who have transportation limitations and services at community places of faith to address religious and ethnic barriers.
Arlington Free Clinic
$50,000 grant over two years
The Arlington Free Clinic (AFC) is the only facility providing free comprehensive medical care for the uninsured, primarily immigrant population in Arlington, Virginia. With funding from LAF, the AFC will implement a patient navigation program to address practical issues of cancer survivorship including language and culture, short- and long-term financial concerns, social support and disease and lifestyle education.
Cancer Services of New Mexico
$10,000 grant over one year
Legal, Insurance, and Paperwork Assistance (LIPA) Program
Cancer Services of New Mexico is an independent, volunteer-led, charitable organization that focuses on reducing cancer suffering in New Mexico. With funding from LAF, this organization developed the “Legal, Insurance, and Paperwork Assistance” (LIPA) program to develop a plan for helping survivors in New Mexico navigate the legal, insurance and paperwork issues associated with a cancer diagnosis. The LIPA program will also share tools and expertise with other New Mexican organizations that are developing patient navigation programs to avoid duplication of services and better program coordination.
Susan B. Allen Memorial Hospital
$10,000 grant over one year
Learning to Survive
www.sbamh.com
El Dorado, Kansas is home to the Susan B. Allen Memorial Hospital Cancer Center which offers state-of-the-art, comprehensive cancer treatment including oncology chemotherapy and radiation services to rural, underserved patients. With funding from the LAF, the patient navigation program, “Learning to Survive” program has been created. This program will result in a patient navigation program that will support cancer survivors in accessing and coordinating resources needed to live with, though and beyond their cancer diagnosis and treatment. The “Learning to Survive” program will help those who are disadvantaged, have difficulty obtaining adequate cancer treatment and support because of low socioeconomic, financial, transportation or educational barriers.
Iowa Department of Public Health
$10,000 grant over one year
Iowa Cancer Network for Follow-Up Care and Support
www.idph.state.ia.us/hpcdp/comp_cancer_control.asp
The Iowa Comprehensive Cancer Control Program (ICCCP) provides leadership and coordination of the state’s cancer prevention and control efforts in collaboration with an array of partner agencies and organizations from across the state. The Iowa Cancer Network for Follow-up Care & Support will use funding from LAF to create a network of cancer treatment facilities, resource centers and other organizations serving cancer survivors to improve follow-up care and support. This network will help assess current survivorship efforts, identify gaps in services and programs and create a plan to address those gaps.
Life With Cancer® at Inova Health System
$10,000 grant over one year
Life With Cancer®
www.lifewithcancer.org
Since its inception 18 years ago, Life with Cancer has established a reputation as a leading provider of comprehensive education and support services to people with cancer, their families and loved ones living in the communities of northern Virginia. Funding through the LAF will help serve the needs of young adult cancer survivors through an online patient navigator program called “My Navigator”. This planning grant will increase understanding of how information technology can be used to improve health and quality of life for the individual user by addressing individuals’ diagnoses and treatment experiences in ways that will help them navigate the complexities of the healthcare system on a real time basis.
The University of Pittsburgh Cancer Institute
$50,000 grant over two years
The African American Cancer Program (AACP) of the University of Pittsburgh Cancer Institute works to raise awareness of cancer programs within the local African American communities to eliminate or reduce barriers to services. Their LAF grant will promote dialogue about the sensitive issues of pain management, palliative care and advance care planning among palliative care providers, African American cancer survivors and community organizations. This project will complement the existing activities of support groups and creates a forum for difficult to discuss issues between African American cancer survivors and local palliative care providers.
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2005 Participants
Cancer Legal Line From Plan to Action: Creating an Outreach Plan to Empower, Inform and Educate all Cancer Survivors in Minnesota about the Legal Issues that may arise due to their Cancer Diagnosis
Cancer Legal Line - Saint Paul, Minnesota
The mission of Cancer Legal Line (CALL) is to alleviate the non-medical stress of cancer survivors by educating them and providing them with legal information, resources and referrals so that they may focus their energies on recovery. The plan specifically addresses long-term survivorship issues after treatment has ended. The goal of the plan is to become a one-stop shop for all legal issues facing cancer survivors in Minnesota and eventually in the entire Upper Midwest. Additionally, by partnering with local law schools, a new crop of lawyers will be trained to recognize these issues and prepared to help. Once created, the program could very easily be replicated in other communities throughout the country.
Evaluating the Impact of Cancer Survivors Conference on the Quality of Life of the Newly Diagnosed and Long-Term Survivors
American Cancer Society - Pittsburgh, Pennsylvania
www.cancer.org
The American Cancer Society (ACS) is dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer through research, education, advocacy and service. For seventeen years, the Cancer Survivors Conference has provided survivors from more than twenty counties in three states with medical, practical, and emotional information and support in non-technical language. The program will now conduct a comprehensive evaluation to assess the impact of the practical support offered by the conference for the newly diagnosed and long-term survivors. The results will enhance their ability to provide effective support to all survivors and will be shared with area hospitals.
Patient Navigator Program
Richardson Regional Medical Center Foundation, Inc. - Richardson, Texas
www.RichardsonRegional.com
The mission of the Richardson Regional Cancer Center (RRCC) is to improve survivors' quality of life through education, advanced treatment and support services. Patients often feel overwhelmed by interaction with many different medical professionals, confused about their primary contact and unable to assimilate information critical to decision-making. A patient navigator can assist patients in communicating with their team of physicians and assist in finding and evaluating resources. Funding from the LAF will fund planning to help structure the proposed Patient Navigator Program. Issues that will be addressed include determining whether the navigator position should be clinical and/or social-service oriented, defining the navigator's duties and responsibilities, and identifying proposed outcomes, patient benefits and tools for measuring outcomes. Patient feedback will be gathered and evaluated regarding patient expectations and needs. Site visits to existing patient navigator programs will help to identify optimal operational structure and avoid known common obstacles and challenges.
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