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Preparing For Not WorkingMany survivors are able to continue working during and after cancer treatment. Other survivors take time off work during treatment, choose to find a new type of work or are not able to return to work at all. Managing financially during periods when you are not working can be difficult if there is a significant reduction in income. If it appears that there is a possibility in the future that you will not be able to work because of your cancer diagnosis or treatment, take time now to prepare. Preparing For Not Working: Detailed InformationThis information is meant to be a general introduction to this topic. The purpose is to provide a starting point for you to become more informed about important matters that may be affecting your life as a survivor and to provide ideas about steps you can take to learn more. This information is not intended nor should it be interpreted as providing professional medical, legal and financial advice. You should consult a trained professional for more information. Please read the Suggestions and Additional Resources documents for questions to ask and for more resources. As a cancer survivor, whether you can keep working depends on your treatment and how it specifically affects you. Many survivors are able to continue working during treatment. However, some treatments may require an extended stay in the hospital or result in a major change in your work situation. Many survivors want to remain employed if it is possible, especially if there is a need to keep health insurance coverage or maintain a certain income. For some, going back to work after cancer treatment becomes a priority. In other cases, survivors decide to change to a part-time work schedule or arrange to work from home for awhile. Others may choose to find a new type of work or may not be able to return to work at all. Because each survivor's experience is different, you will be the one to decide what is best for your situation. Managing financially during periods when you are not working can be difficult if there is a significant reduction in income. If it appears that there is a possibility in the future that you will not be able to work because of your cancer diagnosis or treatment, take time now to prepare. This document provides some ideas about how to prepare for the possibility of not being able to work, including:
What factors are important to prepare for not working? Consider your specific financial, legal and insurance needs when you begin to prepare for the possibility of not working. Your plans need to cover the possibility of not working for a short period of time, for a lengthy period of time or not returning to work at all. Start your planning process by assessing the value of your assets, including home equity, retirement accounts and personal savings. Next, define your options for receiving income if you become disabled, including:
Next, look into what benefit coverage is likely to be available to you if you become unable to work: 1. Review each insurance policy you currently have, including disability, health, life, and property and casualty coverage. 2. Look into the possibility of purchasing disability income insurance coverage if you do not already have it. 3. Find out about any government programs for which you may qualify.
Understanding the employment and benefit protection laws that exist to provide protection for employees who are disabled is an important part of the planning process. The primary laws include:
Extensive information about each of these laws and the answers to common questions are available online and through in-person and telephone contacts with government agencies. The federal government agencies that oversee these laws include the Social Security Administration, the Department of Justice, the Equal Employment Opportunity Commission and the Department of Labor. Keep in mind that the state where you live may have additional protective laws.
The following table provides an overview of areas to consider when planning for the possibility of not being able to work:
What does it mean to go on disability? "Going on disability" means that you are unable to work and are receiving disability income benefits. These benefits may come from an employer-sponsored disability policy, a private disability income insurance policy or through a government-sponsored program. Keep in mind that each insurance policy and the government disability programs have their own definitions about what qualifies as being disabled. Physical impairments, such as fatigue or chronic pain, may be considered a disabling condition. Other aftereffects such as stress, depression or cognitive changes may also prevent you from being able to work for a period of time. To be eligible for disability benefits, your condition must meet the specific definition used in your policy or by the government program to which you are applying. The following types of insurance providers may have different requirements to qualify for benefits:
What can a survivor do to prepare to apply for disability benefits? The following steps will help you prepare to apply for disability benefits: 1. Read each disability policy or government summary carefully and understand their terms before you apply for benefits. This will help you prepare to present your case for benefit eligibility. 2. Obtain a copy of the "Listing of Impairments" from the SSA to learn more about what is necessary to qualify for disability through government-sponsored programs. The SSA Web site also provides information about the medical evidence that is required to be eligible for government benefits. 3. Keep a journal of any unusual physical, emotional and cognitive changes. Make notes of how your symptoms affect your work and any activities of daily living. 4. Tell the members of your health care team about the specific symptoms you are experiencing and how they are affecting your work and personal life. Also, ask them to note this information in your medical records as this will usually be considered at the time you apply for benefits. 5. Before applying for disability, talk with your doctor to find out if he or she will support your application for benefits. Evidence of your disability is required from a doctor when you apply for disability benefits, whether from a private insurance company, the SSA or another government agency. Consider your doctor's opinion and recommendations about this matter. If you and your doctor do not agree, you can consider additional medical opinions. 6. Discuss your application for disability benefits with your health care team. Your doctor or other team member (such as an occupational or physical therapist) may have specific ideas about accommodations that could help you continue to work. If there are no recommendations, ask your doctor for a written statement of his or her opinion about why you are not able to work at this time. This type of documentation is typically very helpful during the process of applying for benefits. 7. Request copies of your medical records periodically (there may be a charge for the copies). Keep in mind that under your state's laws there may be limitations on what you are allowed to see. 8. If you become disabled and do have a premium waiver included in your disability income insurance policy, continue to pay the full premiums on time. In order to avoid having your policy canceled, do not stop making your premium payments until you receive a written notice from the insurer directing you to do so. 9. Remember to keep good records of all the correspondence and telephone conversations that occur between you and the insurance company. This documentation will be useful in the event of any future questions or disputes. After you are found eligible to receive disability income insurance benefits, you should continue to receive the benefits as long as you are disabled. Your case will be reviewed periodically during the time you are receiving benefits because the insurer will need to verify that you are still disabled and continue to need benefits. Disability benefits will usually end if you decide to go back to work or if the medical team and your insurer believe that your health has improved to the point where you are no longer disabled. This document was produced in collaboration with: David S. Landay, Esq., author of Be Prepared: The Complete Financial, Legal and Practical Guide for Living with Cancer, HIV and Other Life-Challenging Conditions. Works Cited "Will I Be Able to Work During Treatment?" Cancer.org. 2006. American Cancer Society. 3 May 2006. Landay, David S. Be Prepared: The Complete Financial, Legal and Practical Guide to Living with Cancer, HIV and Other Life-Challenging Conditions. New York: St. Martin's Press, 1998. Petersen, David. Seminar: Financial Planning for People with HIV/AIDS. New York, 1994. Simon, Ellen. "The Business of Life: Working With Cancer." ABC News.com. 2006. ABC News Internet Ventures. 3 May 2006. Social Security Administration, Social Security Online. Disability Planner, 15 December 2005, and SSA Publication No. 05-10029, Disability Benefits. January 2006. Preparing for Not Working: SuggestionsThe suggestions that follow are based on the information presented in the Detailed Information document. They are meant to help you take what you learn and apply the information to your own needs. This information is not intended nor should it be interpreted as providing professional medical, legal and financial advice. You should consult a trained professional for more information. Please read the Additional Resources document for links to more resources Prepare a budget to decrease your expenses if it appears that your work situation or income is likely to change. You may also want to do a second budget based on estimates of your future income and expenses. If it is possible for you to increase your income, consider that possibility as well. Assess your current and anticipated medical expenses, including COBRA or other insurance premiums, medical co-payments and deductibles. Review your current insurance policies (such as medical, short-term and long-term disability income) and determine what you can do to maintain your coverage. Understand potential tax ramifications when reviewing retirement plans and investment accounts. Talk with your human resources coordinator about employer-sponsored benefits to be certain that you are taking full advantage of coverage that is available to you. Keep a journal of your contacts and steps taken, as well as copies of your paperwork and applications. Talk with other cancer survivors who may have had to stop working. They can provide both emotional support and guidance for your decisions. Ask yourself the following questions about your disability benefit status:
Talk with your doctors to find out whether there will be support of your application for disability benefits. If there is support, be certain that the medical evidence for your claim is documented by your doctor(s). Consider asking questions about the following issues:
Check the Social Security Administration (SSA) Web site. The SSA provides very detailed information called the Listing of Impairments and Evidence Requirements on their Web site (www.ssa.gov). You can learn about eligibility for their disability programs: SSI, SSDI, Medicare and Medicaid. There is also a full description of the application and determination processes. Preparing for Not Working: Additional ResourcesThe resources listed below provide more detailed information and support services to help you with preparing for not working. Please read the Detailed Information and Suggestions document for more information and questions to ask. Click a resource for more information:
Americans with Disabilities Act
This Web site is sponsored by the U.S. Department of Justice and provides information about requirements and rights covered by the Americans with Disabilities Act (ADA). Information includes a guide to disability rights laws, common questions about ADA and links to other federal agencies that have ADA information. The site also provides information about the ADA Mediation Program, which can help people resolve ADA-related problems.
The Centers for Medicare & Medicaid Services is the federal agency that oversees the Medicare and Medicaid programs. The Web site offers direct links to each program. The site also offers a glossary of agency terms and a search tool. Some common Medicare and Medicaid forms can be printed from the site, or you can call the toll-free number to request that forms be mailed to you.
The Federal Citizen Information Center offers hundreds of booklets and fact sheets on consumer issues and government services. You can view and print information from the Web site or you can request that information be mailed to you. Some mail order requests will carry a small fee. Topics include money management, saving for retirement, investing, Social Security, Medicare, credit, consumer protection laws and more. Some publications are available in Spanish and other languages.
The Financial Planning Association® (FPA®) is a nonprofit, membership organization for the financial planning community. FPA offers educational resources to help individuals discover the value of financial planning, including information on investing, tax planning, insurance, retirement planning and more. Tools on the FPA Web site outline financial planning decisions you should consider at different times in your life. The site also includes an online financial planner referral service called PlannerSearch to help you locate a financial planner in your area.
LIVESTRONG SurvivorCare offers assistance to all cancer survivors, including the person diagnosed, caregivers, family and friends. The program provides education, information about treatment options and new treatments in development, counseling services and assistance with financial, employment or insurance issues. To provide these services, LIVESTRONG SurvivorCare has partnered with several organizations, including CancerCare, Patient Advocate Foundation and EmergingMed. The LIVESTRONG Survivorship Notebook is a tool that can help you organize and guide your cancer experience. The portable, three-ring binder contains a variety of information covering a full range of physical, emotional and practical survivorship topics. You may order a free LIVESTRONG Survivorship Notebook at www.livestrong.org/notebook. Shipping and handling charges will apply. National Association of Personal Financial Advisors (NAPFA)
The National Association of Personal Financial Advisers (NAPFA) is a professional organization for financial planners. Membership is limited to financial planners who charge customers a set fee rather than those who earn commissions from products that they sell to customers. From their Web site, you can find a fee-only financial planner in your area. The site also includes information about how to choose a financial planner and tips for managing your finances, as well as articles about investing, long-term care and disability insurance policies, retirement planning and more.
Social Security Online is the official Web site of the federal Social Security Administration, which oversees both Social Security and Medicare. From this site, you can access information and print out forms that relate to all aspects of Social Security and Medicare, including finding out what benefits you qualify for, applying for benefits and requesting information about Social Security policies or procedures. You can also request a personal Social Security Statement that will show how much you (and your employers) have paid in Social Security taxes and what benefits you can expect to receive now and in the future. Information is available in the following languages: Arabic, Armenian, Chinese, Farsi, French, Greek, Haitian-Creole, Italian, Korean, Polish, Portuguese, Russian, Spanish, Tagalog and Vietnamese.
The U.S. Department of Labor is the federal agency that enforces workplace laws regarding discrimination, safety, benefits and wages. The Web site includes information about disability protections, health plans and other benefits, termination policies, unemployment insurance and leave benefits. Overviews of federal laws and answers to frequently asked questions are provided, and both email and telephone support are available if you have further questions.
The U.S. Department of Veterans Affairs oversees benefits to nearly 25 million men and women who have served in the military during wars or official periods of conflict. If you are a veteran or the spouse or child of a veteran, you can contact this agency for information about your benefits. The Web site has information about health services, pharmacy benefits, life insurance, vocational rehabilitation, employment resources, compensation, pensions and more. Some information on the site is available in Spanish.
The EEOC is the federal agency that oversees and enforces employment laws. The Web site provides information about different types of discrimination, how to file a charge of discrimination and important laws regarding this subject. Information on the site is available in Spanish and several other languages.
The Cancer Legal Resource Center (CLRC) provides information and resources on cancer-related legal issues to survivors, their families, friends, employers, health care professionals, and others coping with cancer. The CLRC offers information on a broad range of cancer-related legal issues, including health insurance, employment, government benefits, estate planning, advanced health care directives, family law and consumer assistance. Through a national toll-free Telephone Assistance Line (866-THE-CLRC), callers can receive information about relevant laws and resources for their particular situation. The CLRC volunteer panel of attorneys and other professionals provide more in-depth information and counsel to CLRC callers. All CLRC services are free and confidential. Services are available in both English and Spanish |

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