We fight to improve the lives of people affected by cancer
REPORTS & FINDINGS
At the LIVESTRONG Foundation, we refuse to accept the decade or more that often passes between when research is conducted and its impact on patient care. We believe that the people affected by cancer who invest their time and energy in our research efforts deserve to directly benefit from what we learn, when we learn it. As experts in research and evaluation, the LIVESTRONG Research and Evaluation team collects, interprets and disseminates data on cancer survivors’ experiences so that the LIVESTRONG Foundation and the cancer community at large can effectively develop and refine programs that meet the needs of people affected by cancer.
By leveraging our committed constituency, our government and non-government partners in cancer advocacy and the trusted name recognition we’ve built in the cancer community, the Foundation executes patient-centered research projects that are not always possible in other settings. Our research is informed by the most pressing questions in the evolving field of survivorship research and by what we hear on a daily basis from people affected by cancer.
Our research is unique in that we focus on integrating findings into programs and services in real time. We distribute our results through reports and briefs, and we apply our findings by improving program design, scaling up access to resources that work and focusing our advocacy efforts based on what matters to the individuals we serve.
Many of our reports highlight important lessons we have learned through our work, while others focus attention on the global burden of cancer or provide unique insight into the cancer experience. In addition to directly impacting the work we do each day, such as informing the creation of programs like LIVESTRONG at the YMCA, these reports are important tools for the cancer community to ensure that the needs of cancer survivors are heard and addressed.
We believe that by taking this approach, we can transform research to be patient centered. Browse our Reports & Briefs page and contact firstname.lastname@example.org with any questions. Here are our most recent reports & briefs:
The following infographic provides an overview of the LIVESTRONG Cancer Navigation program in 2013. Highlights from the infographic include the number of individuals supported through navigation services and how the navigation model meets its programmatic goals to help people affected by cancer.
The following infographic provides an overview of the LIVESTRONG Fertility program in 2013. Highlights from the infographic include the number of individuals who received discounted fertility preservation rates across the country and the types of services they accessed.
In 2012, we decided to focus the LIVESTRONG Survey on the practical concerns that cancer survivors face. A total of 6,383 survivors completed the survey and provided information about their practical concerns related to work, school, debt, insurance and fertility preservation. The Foundation shared the results of the survey through four briefs published in 2013.
The LIVESTRONG Foundation conducted this market research study to inform its strategy for its Hispanic/Latino outreach campaign, which sought to close the gap in health disparities for Hispanic/Latinos diagnosed with cancer. As a result of the award-winning outreach campaign, the number of Hispanic/Latino survivors accessing the Foundation’s free, confidential navigation services has increased by 40 percent.
The LIVESTRONG Foundation convened the Essential Elements of Survivorship Care Meeting in Washington, D.C., in September 2011 with the goal of making progress in building consensus in the survivorship community around how to best address the needs of post-treatment survivors. Over 150 leaders, stakeholders, experts, cancer survivors and cancer survivor advocates achieved consensus on these 20 essential elements of survivorship care delivery. This brief provides both an overview and the outcome of the meeting, including the 20 essential elements of survivorship care.
In June 2010, LIVESTRONG launched a survey that in part assessed how cancer survivors engage with the cancer community. This brief explores the results of how cancer survivors and their family members, friends and loved ones on feel supporting the fight against cancer impacts them personally.
This brief includes case studies from Rwanda and Jordan describing how existing health systems designed to treat infectious diseases in low-income countries can be strengthened to address the urgent and growing cancer needs of developing populations. Recommendations included in the brief focus on interventions that will be the most effective and have the biggest impact on quality of life and survival.
“I learned to live with it” Is Not Good Enough: Challenges Reported by Post-Treatment Cancer Survivors in the LIVESTRONG Surveys.
In June 2010, LIVESTRONG launched a new and improved version of the 2006 survey which once again focused on the physical, emotional and practical needs of post-treatment survivors. This report describes the post-treatment needs of this new group of survivors and analyzes how their needs compare to the survivors surveyed in 2006, highlighting the gap between who reports post-treatment needs and who receives care for those needs as a critical breakdown in post-treatment survivorship.
In 2004, LIVESTRONG began providing national, one-on-one navigation services to anyone affected by cancer, regardless of cancer diagnosis, stage or demographic factors. This report reviews LIVESTRONG’s navigation services and highlights the impact this model had on cancer survivors in 2010.
Defining Survivorship Care: Lessons Learned from the LIVESTRONG survivorship center of excellence network: A LIVESTRONG Report
The LIVESTRONG Survivorship Center of Excellence Network (Network) was established in 2005 to advance survivorship care and improve the health and quality of life of post-treatment cancer survivors. This report summarizes the contributions of the Network to date, offering insight from a qualitative deductive study conducted on the Network and suggesting next steps for accomplishing the Network’s goals.
Based on a survey of cancer survivors, this report details how survivors want to use, access and interact with their health information as well as how survivors feel medical care will change with the adoption of electronic health information exchange.
This report is the result of a global research study executed by LIVESTRONG in 2007 and focuses on the challenges and opportunities presented by the stigma of cancer around the world. LIVESTRONG plans to use the results of this research to strengthen patient advocacy in international settings and to build a global grassroots movement.
This report was the result of data gathered from 2,307 cancer survivors who voluntarily participated in the LIVESTRONG Survey for Post-Treatment Cancer Survivors initially launched in 2006. This report details the physical, emotional and practical of cancer survivors needs as outlined by cancer survivors themselves, providing a road map for future funding, research and advocacy.
During August 24–26, 2009, an unprecedented gathering of 500 delegates representing more than 65 countries occurred in Dublin, Ireland, at the LIVESTRONG Global Cancer Summit. This report outlines the events of those three days and highlights opportunities and strategies that were identified during the summit that collectively provide a unified multinational roadmap to making cancer a global priority.
Cancer is a global health challenge with an associated global economic burden. This report estimates the total economic liability of new cancer cases and allows us to put real dollars ($305 billion a year) to the pain and suffering that we already know exists. It presents the results of research and analysis of global expenditures for cancer control and provides detail by country, income group, and geographic region.
In November of 2007, Texas voters approved a landmark $3 billion initiative to establish the Cancer Prevention and Research Institute of Texas to make grants to create and expedite innovation in research, prevention and cures for all human cancers. The push for the initiative started at the grassroots level, spurred by patient advocates and cancer survivors. This case study details the legislative journey from start to finish.