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AFTER TREATMENT: Emotions after Cancer Treatment                                      2

“Survivorship means to me that there is life continuously, all the time.” —­ ALECIA H.

    Comfort care finds ways to:                           THE CAREGIVER ROLE
    •	Relieve suffering and provide support
     for the survivor                                     Being a caregiver for a loved one who has advanced
    •	Prevent, evaluate and treat pain                    cancer may be very different than caring for some-
    •	Address other physical, emotional and               one who has a chronic (or ongoing) illness. A person
     spiritual concerns                                   with advanced cancer usually has a variety of symp-
    •	Respect the cycle of life including end of life     toms and needs that caregivers try to manage. In
    •	Assist with grief issues                            most cases, the needs of a loved one in hospice are
                                                          expected to increase slowly over time.
    Managing pain is very important. It affects qual-
ity of life. The National Hospice and Palliative              Caregivers may be involved in activities such as:
Care Organization offers information about pain               Physical care
management, hospice care and caregiving. Call
703.837.1500 or visit nhpco.org.                                   •	 Organizing and giving medication
                                                                   •	 Monitoring symptoms and discussing
PLANNING FOR END-OF-LIFE
AND HOSPICE CARE                                                     treatments with loved ones
                                                                     and hospice staff
Sometimes it is necessary to plan for end-of-life care.            •	 Providing assistance with personal care
Start by talking with loved ones about preferences.
Let your health care team know if there is no one             Emotional care
who can act as a primary caregiver. A social worker                •	 Listening, talking, reading or playing music
can help arrange for the best level of end-of-life care.           •	 Providing companionship and love
                                                                   •	 Helping loved ones and friends under-
    Include the following while planning for care                    stand what is needed
near the end of life:
                                                              Practical care
    Living arrangements                                            •	 Handling insurance and other
    Consider options for living arrangements. Think                  financial matters
    about comfort and trust issues. Care might be                  •	 Paying bills
    provided in your own home or that of a loved                   •	 Coordinating communication and visits
    one. Other options might be an assisted living                   from loved ones, friends and hospice staff
    facility, nursing home or hospice program.                     •	 Making certain that last wishes are
                                                                     carried out

Caregivers                                                Talk with loved ones about
Caregivers may be loved ones, friends or                  end-of-life planning:
professionals brought in to help. Consider
when and how caregivers will be found. Identify           	 Get planning help from your health care
whom could help with daily care needs. Needs                 team members.
might include bathing, dressing, feeding and
assistance going to the bathroom. Caregivers              	 Identify living arrangements where care can
must be trustworthy and dependable. There                    be provided.
must be someone to cover all of the times when
care will be needed.                                      	 Consider when and how caregivers will be found.
                                                          	 Look into advance directives for health care.
                                                          	 Learn about hospice care.
                                                          	 Seek support to deal with grief and loss issues.

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