Because amyloidosis is rare, the diagnosis is often delayed or the condition goes undiagnosed. Therefore, it is difficult to know exactly how many people are affected by this disease. However, it is thought that between 1,500 and 2,500 people develop AL amyloidosis each year in the United States. Hereditary and AA amyloidosis are much less common than AL amyloidosis.

It is important to remember that statistics on how many people are diagnosed with this disease are an estimate. So, your own risk may be different. Doctors cannot say for sure how long anyone will live with amyloidosis. Learn more about understanding statistics.

Source: Brigham and Women’s Hospital, September 2015: A Patient Guide to Amyloidosis.